Lupus 2017 Patient Education Conference

​Wednesday, March 29                  Room 203-204

Congress Venue

Melbourne Convention Exhibition Centre
1 Convention Centre Pl,
South Wharf 3006
Melbourne


On behalf of the Congress Chair and Organizing Committee, it is with great pleasure we invite you to the Patient Conference Program of Lupus 2017. We have put together a program that aims to provide you firstly with information on the causes of lupus, and best practice in the management of this life-changing autoimmune disease.  Our panel of international experts will present information about the latest research developments and opportunities available to help improve the quality of life for patients.

 

We also recognize that by sharing each other's experiences, we can bring together the collective voices that can serve to strengthen the understanding of the lupus journey for patients and their caregivers. It is not until these experiences are better defined that we can improve on the delivery of quality care, and enhance safety and experience of all people who are affected by lupus.  

 

This program is designed with you, as a patient, in mind, and your participation and engagement will determine its success. We look forward to welcoming you in beautiful Melbourne.

 

Lupus 2017 Patient Conference Program Organisers

  • Dr Alberta Hoi, Rheumatologist, Monash Health
  • Duane Peters, Lupus Foundation of America
  • Barbara Ward, President, Lupus Association of New South Wales


Patients are welcome to attend the full Congress program for a reduced registration fee of US$ 50. To register please click below.

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Preliminary Agenda

08:30-10:30 - Outcome measures and treatment targets in SLE
 (in Hall Melbourne 1)

(This session is part of the International Congress on SLE & Asian Congress on Autoimmunity. Individuals registered for the Lupus Patient Conference may attend this session, if desired.)

 

1.             Dafna Gladman – Measuring disease activity and damage in SLE

2.             Andrea Doria – Remission as a treatment target in SLE

3.             Mandana Nikpour – Low disease activity as a treatment target in SLE

 

10:30 – 11:00 – Coffee Break

 

11:00-12:30 - Patient Program Module 1: What we have learned about the lupus?

Chair: Barbara Ward

 

1.            Eric Morand – Causes, Pathways and Progression of Lupus 

2.            Brad Rovin – Challenge and triumph of kidney disease in SLE 

3.            Ian Bruce – Cardiovascular risk in SLE 

4.            Susan Walker – Pregnancy journey

 

12:30 – 13:30 Patient Program Module 2: The changing outlook for treatment of lupus

Chair: Sandra Navarra

 

(A light boxed lunch will be provided to all registered participants.)

 

1.             Joan Merrill – Current therapies and changing perspective on managing lupus 

2.             Richard Furie – Overview of new therapies in development for lupus 

 

13:30-15:00 Patient Program Module 3: Living and coping with lupus

Chair: Michelle Leech

 

This session features a discussion forum among a panel of lupus medical experts and people living with lupus.  The panel members will share stories and successful strategies for living and coping with lupus.  Bring your questions, and let our experts help you answer them.

 

A/Prof Davinder Singh-Grewal – Pediatric rheumatologist, Westmead Children's Hospital

Dr. Peter Gowdie – Pediatric rheumatologist and general pediatrician, Monash Children's Hospital

Dr. Kathy Nicholls – Nephrologist, Royal Melbourne Hospital

 

15:00-15:30 – Break

 

15:30 – 17:00 – Patient Program Module 4: Resources for patients with lupus and their families

Co-Chairs: Barbara Ward and Duane Peters

1.             Local resources for people with lupus featuring representatives of Australian groups

2.             Self-help resources – Dian Syarief, Syamsi Dhuha Foundation presenting on Exercise DVD and App

3.             Australian Lupus Group Collaboration – Discussion among representatives of Australian lupus about collaborative efforts to raise awareness of lupus and provide support services and advocacy to help individuals and families affected by lupus. 

4.             World Lupus Federation – Information about global efforts to address lupus around the world.

5.             Closing remarks – Duane Peters & Barbara Ward


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